Corinne Sophia was born on July 12th, 2011 at 1:27pm into the loving arms of her parents Emily and Ryan Moll at Mercy in Rogers, AR. Corinne immediately had medical complications and was helicoptered by the Angel One team to Arkansas Children’s Hospital in Little Rock. After several days of medical testing and amazing medical care Corinne was diagnosed with Zellweger’s Syndrome, a rare metabolic genetic disorder that affects normal brain development and leads to respiratory distress and in Corinne’s case heart failure. Corinne was back transported, again by the Angel One helicopter team, to Washington Regional Hospital in Fayetteville, AR so she could be loved by all of her friends, family, and big brother Evan. Corinne passed on August 10, 2011 at 9:16pm in the arms of her Parents.


Thank you for reading our blog.
Best way to read Corinne's story from the beginning is to go to the left and drop down July and start with "Weekend before Corinne's arrival"

Wednesday, January 18, 2012

What would of been...6 months old

Corinne would of been 6 months old last week. Some times I still feel like I need to be pinched and awaken in hopes this is all a dream. Looking back at pics tonight of what Evan looked like at 6 month. 4-6 months (and 3yrs) have been my favorite period of time with him. My heart is breaking for that missed opportunity with Corinne. I know she is in good company right now though. Love you baby girls!!

That morning Evan got dedicated at church (Fellowship)he was 6mos old

Vacationing with the Moll's 6 mos old
bath time 6 mos old
Posted by at

1 comment:

  1. JPEMARSHALLFebruary 17, 2012 at 9:08 AM

    Hello. My name is Pamela Marshall. I came across your blog while doing a search for other families impacted by Peroxisomal Disorders - Zellweger Spectrum.

    Our son Ethan, is 18 months old, and is on the PBD-Zellweger Spectrum. I am the Family Registry and Support Group Coordinator for the Global Foundation for Peroxisomal Disorders (www.thegfpd.org) which is dedicated to families impacted by this family of disorders.

    I am so sorry for the loss of your daughter. Please know that you are not alone. The GFPD is here and has families that understand this devestating disease. It is our desire that no one face this disorder and its everlasting impact on families lives alone.

    I hope that you will check out our website and consider being part of our support group.

    I blog about our journey with PBD as well - http://thejourneyweareon.blogspot.com

    ReplyDelete

Subscribe to: Post Comments (Atom)