Corinne Sophia was born on July 12th, 2011 at 1:27pm into the loving arms of her parents Emily and Ryan Moll at Mercy in Rogers, AR. Corinne immediately had medical complications and was helicoptered by the Angel One team to Arkansas Children’s Hospital in Little Rock. After several days of medical testing and amazing medical care Corinne was diagnosed with Zellweger’s Syndrome, a rare metabolic genetic disorder that affects normal brain development and leads to respiratory distress and in Corinne’s case heart failure. Corinne was back transported, again by the Angel One helicopter team, to Washington Regional Hospital in Fayetteville, AR so she could be loved by all of her friends, family, and big brother Evan. Corinne passed on August 10, 2011 at 9:16pm in the arms of her Parents.
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Best way to read Corinne's story from the beginning is to go to the left and drop down July and start with "Weekend before Corinne's arrival"
Monday, December 12, 2011
Corinne's 5 month birthday- Evan missing his little sis
Today Evan asked me if we could get Corinne a Christmas present and take it to her in Heaven! Such a sweet considerate boy. Now his first suggestion on gifts were drums (which is the top thing he ask Santa for, so there does seem to be some self motivation there :)
A few times he has asked me if when Corinne comes home from Heaven and gets all better can he help feed her and play with her like his friend Harrison gets to do with his sister Elliott. I told him that one day we will get to visit Corinne in Heaven but she wont be able to come home, his response was well Heaven is far away but so is Tennessee and Grandpa Bob and Grandma Cheryl get to visit our house.
Most of the time Evan seems to get "it", but it has offered a new level of heartbreak lately when I notice him missing doing the things he thought a big brother would get to do.
Arkansas Children's Hospital had a memorial service for the children that lost their lives this year. We were not able to attend but they sent us the program and an ornament with Corinne's name on it. It broke my heart when I read the program and there were over 60 children listed just in the months of August-October who passed away. One of the names I think I recognized was of the baby boy that was next to Corinne during her time there in the NICU. I didn't realize he was terminal :( He was so adorable I always wanted to go over and kiss his chubby little cheeks.
Happy 5 month birthday baby girl, we love you and miss you soooo much!!
Corinne getting to wear her first outfit!! Her little sister onsie! It was one of the two outfits we had packed when we left to have Corinne in the hosptial