Corinne Sophia was born on July 12th, 2011 at 1:27pm into the loving arms of her parents Emily and Ryan Moll at Mercy in Rogers, AR. Corinne immediately had medical complications and was helicoptered by the Angel One team to Arkansas Children’s Hospital in Little Rock. After several days of medical testing and amazing medical care Corinne was diagnosed with Zellweger’s Syndrome, a rare metabolic genetic disorder that affects normal brain development and leads to respiratory distress and in Corinne’s case heart failure. Corinne was back transported, again by the Angel One helicopter team, to Washington Regional Hospital in Fayetteville, AR so she could be loved by all of her friends, family, and big brother Evan. Corinne passed on August 10, 2011 at 9:16pm in the arms of her Parents.
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Best way to read Corinne's story from the beginning is to go to the left and drop down July and start with "Weekend before Corinne's arrival"
Thursday, December 1, 2011
Wrapping up 2011
In November of 2010 we found out we were pregnant with our second child! In February of 2011 right before my sisters, Sarah and Rachel, visited Arkansas for one of our annual gatherings I found out it was a girl! I specifically asked the doctor if I could have my ultra sound before their visit so we could enjoy some shopping—anyone who knows us knows the Wegner girls shop when they are together!
In May Ryan, Evan, and I did a 10 day road trip to visit our family and have our last hoorah before our lives would be taken over with sleep deprivation, naps, feedings, and road trips that consisted of screaming children. We stopped outside of St Louis for Ryan’s cousins wedding where we got to see Ryan’s parents, Aunt, Uncle, and cousins. We then headed to Lake Cumberland, Kentucky to visit with my sister Sarah, husband Jason, daughter Elise, and her in-laws on their houseboat. It was suppose to be 5 days of fun in the sun and water, but instead it ended up 5 days in the rain and kiddy pool up top ( this was during the same time the Joplin Tornado hit and so many lives were devastated). As always we made the best of it and enjoyed our time together. After that we headed to Memphis to visit one of Ryan’s best friends and his brother Jerrod and his daughter Meredith for a trip to the zoo and a baseball game. The trip overall was a huge success. Evan did great in the car! I was 7 months pregnant and I did pretty well myself!
On July 12, 2011 at 1:27pm our beautiful blessing of a daughter was born. I had an amazing pregnancy and delivery with no concerns and great medical care. The minute Corinne Sophia Moll was born she was not breathing and her heart was not beating. After several hours in the NICU she was helicoptered 3 hours away to Arkansas Children’s Hospital. After 2 weeks of testing Corinne was diagnosed with Zellwegers syndrome. Zellwegers is a recessive genetic disorder that damages the white matter of the brain and also affects how the body metabolizes particular substances in the blood and organ tissues. Due to these things Corinne had severe brain damage, 2 holes in heart causing excessive heart failure, and her other organs could start failing her at any moment. Zellwegers has an average life expectancy of 6 months but due to Corinne’s severe heart failure and poor brain development our time with her would be much less.
In early August Corinne was back transported to a local hospital (Washington Regional) so she could meet her friends, family and spend some quality time with her big brother Evan. On August 10, 2011 after Corinne’s 29 days to struggle for life Corinne died in our arms.
Corinne has given us the biggest heart break of our lives and been the best blessing. Bitter sweet I know…
In September Evan and I went to Tahoe for a vacation with my sisters and their families. The trip was difficult for me being away from things that reminded me of Corinne, but Tahoe is breathtaking and it was nice to be with family. It also marked the first visit where all the cousins successfully got along! No biting, no hitting, no wrestling moves (Jack), and overall good sharing skills :)
The end of our year has been difficult on so many levels, but our time with Evan becomes more amazing and precious. Evan turned 3 on November 16th and we celebrated with a birthday party to Build-a-Bear! In November Evan also started soccer!
Every day Evan amazes us with his words and actions. Here a few of our favorites..
1-Mommy “Evan Thanksgiving is a time where we say what we are thankful for, what are you thankful for?”
Evan- “My Mommy and Daddy”
2- Mommy sarcastically asks “Evan what planet are you from?”
3- Mommy “Evan where is Corinne?”
Evan- “Heaven and I will get to go there one day because I told Jesus I love him”
4- Katie (family friend) asks Evan during a middle of a tantrum “Evan what do you want for your birthday?”
Evan instantly dries up the tears and says “a John Deere, a football helmet… (then looks around the room and points to their TV and says..) and that TV.”
Another huge part of our year has been the amazing outreach from our family, friends, and new friends we have meet along the way. Thank you for all of your love and support.
Lastly we have some friends that have dealt with tragedy this year too.
The Woodruff family reached out to me when Corinne was at Children’s. They lost their son Miller in June 2011 to Spinal Muscular Atrophy; he was almost 3 months old. Please check out www.imwithmiller.com to learn more about their story and support their amazing cause.
Another family who has touched our lives is the Tucker’s. They are friends we have had for years and have been a huge support during this time in our lives. This year has been a difficult year for them as well. Jeff lost his stepmother in November 2010 to cancer and his stepfather has recently been diagnosed with throat cancer. Sarah’s mom was also diagnosed with an aggressive Cancer in January of 2011. In support of their family they have started a team to raise money for the American Cancer Society. To learn more please check out their link. www.relayforlife.org/bentoncounty Team Name- Fighting Like Hogs
2011 started off on a higher note and ended on a lower one, but we our thankful for what we do have and thank God every day for the blessings he has given us. Its gives me much peace to know Corinne is in Heaven and there will be a day we are all together!
The Moll Family
Ryan, Emily, Evan, & Corinne
To read more about Corinne’s life please check out her blog at